Hi Folks
Nothing really new to report. Josiah has good and bad swings it seems and he's yet to fully recover and be back to where he was 2 weeks ago. Yesterday was the most engaged he has been in a week, but then he has a bad spell and it's a couple steps back again. He started this morning with another bad spell and so he's stil getting chloral on 'n off as the nurses see fit. I'm only guessing, but I think his airway is very sore because his spells tend to bring up a lot of pinky secretions for the rest of the day. So your prayers would be dandy: that the doctors can figure out what's going on (feverish again today and just plain irritable at times) and that Josiah will be able to recover and have his airway healed.
Oh, the PICC line was removed yesterday. Josiah has a really terrible rash from the adhesive (he reacts to all kinds of tape) but I think it'll get better soon. He is still being g-tube fed and hasn't been allowed to take a bottle for over a week, which may get him a little upset but so far he's been OK with it.
Josiah's latest thing (made possible by his new/temporary ventilator): to blow air/spit of his mouth! It's his form of singing (he'll really get going if you sing to him!) and I think he just likes the newness of it and the vibrating it gives to the lips. Mommy calls it 'kisses' and Daddy calls it 'race car sounds'. :D
Christmas is sneaking up on us. This is my first round of Christmas non-anticipation. Usually I'm all wound up with Christmas decorations and jingles, but I believe all the sizzle and zing of Christmas is going to be shortened and muted this year. The hospital environment (though they try hard) hides/hinders the rythm of seasons. It's been weird because I don't feel Christmasy at all.
Grace & Peace.
- Andrew, Marie & Josiah
2 comments:
I'm not surprised that you don't feel very Christmasy at the moment. Your life revolves around the hospital, Josiah, Marie and you. We will keep praying and upholding you all before God.
Love Sue
Oh Lord,
For your unfailing love is as high as the heavens.Your faithfulness reaches to the clouds. Ps 57:10
Please pour down your everlasting tingles of love onto Andrew, Marie, and Josiah. May you be glorified through them. Holy Spirit strengthen and protect them from the evil one. For Lord you have come so that we may be free. Free your servants from this heaviness. From these chains that so easily bind them from your joy. Release the helplessness and replace it with hopefulness once more. Speak to them, and may they hear from you clearly. Restore your servants and give them peace I pray. For you have all power and glory forever and ever, Amen.
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