Hello All
Josiah had a good/bad yesterday. When he was awake he was happy and well-tempered, but when he slept he had seizures - about 10 in total we think. So that wasn't very nice, and they were all different kind of seizures: some he would d-sat and not wake up but self-recover; others he would tense up and cry after a brief 'blank' period; he had at least one 'frozen chest' moment when it was difficult to bag oxygen into his lungs. Thankfully he had no seizures over night and is so far having a seizure-free day - thanks for the prayers :)
Oh, and on the topic of siezures, Josiah started a new seizure medicine yesterday. His dose will increase in small increments each day and we'll know in a couple of weeks how it is working for him. The neurologists want to see if they can eliminate more of seizures, and maybe even determine if there has been more sub-clinical seizures going on that are not noticeable. When never expected that Josiah would have a seizure-free life and were able to live with the fact that Josiah would continue to have the odd seizure, but we're grateful that the doctors still believe they can do more and are trying this new approach with Josiah.
Today Josiah started off his day quite feverish but well-tempered (high temp needed tylenon and ibprofen), and has come down a bit in temp and heart rate. Josiah has an absolute fascination with his helium balloon and really likes the fibre optic 'UFO' light we got him this week! Also, a few days ago Marie held Josiah's shoulders and he controlled his own head very well for over 8 minutes - so cool!
Lots of Love.
- Andrew, Marie & Josiah
2 comments:
I'm so glad the Doctors are not giving up on Josiah and It's so neat to see Josiah's strength-self-recovering and lifting his head-woweey! Perhaps in those 'blank' moments he was seeing Jesus face to face...just a thought...THAT would be so cool! I wonder what Jesus said to him if that was the case. ;)
God be with you all!
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