Hello Everyone
Good morning and Thanksgiving to you all! Marie and I were able to make it to our family gathering Saturday night and we were glad for our little getaway. Josiah's had a bit of a yo-yo weekend because he hasn't been acting like himself. He sleeps a lot (too much really just to pin to his meds), his energy levels are low, and he still gets puffy - things you guys can all pray about. Yesterday was his least puffy day of the weekend, but Josiah still hasn't gotten back to where he was last Monday (alert, interactive, basically his old self). Today they are doing bloodwork to check how well the new seizure meds are being absorbed by his body. Marie has a sense something is wrong, but she can't figure out. Pray that the doctors know what to do about Josiah's heart, because for the moment they aren't sure what exactly is going on and may run a couple of tests on Josiah.
I can't remember if I mentioned it earlier or not, but Marie's maternity leave has come in - Yay! What a huge relief and answer to prayer.
You can pray for us as the longevity and strain of it continues to chip away at our hope and our ability to get from day to day. We anticipate that as Josiah grows and develops we'll be seeing more indications of how underdeveloped his brain really is, and that's really difficult to process but it's a reality of our life now no matter how we imagined the rest of our lives would play out.
Thanks to our visitors this week: James, Sandi, Jack & Kelly G., and Alex (?) & Lillian. If I missed anyone, my apologies.
In God's Grace & Peace.
- Andrew, Marie & Josiah
3 comments:
I have such a burden on my heart for your family - I'm a complete stranger, I know...
You are running such a difficult race. As you face each new day I pray for courage and for strength. For continued dreams and hopes, as distant as they may seem right now. Your Josiah is such a brave baby. He has gone through so much, and has been given such good parents to help him through. I AM a big fan of him, I'm pulling for him and for both of you as well. The future is hazy, but we trust in the One who holds all of our tomorrow's. As you continue to choose to trust, I continue to pray that you have the strength to make that choice.
Amen to the above post.
Love Sue
HORRAY for mat.leave moola!!! Glad to hear it! And yes heart and puffy prayers coming at ya'!!!
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