This one will be brief because my parents are visiting but I couldn't resist the available computer.
Josiah's had an up 'n down weekend. Wednesday was a fabulous day, but in the days that have followed he has had many of his 'dying spells' (severe panic attacks in which he needed oxygen and sometimes manualing 'bagging' to recover). This has really hit hard because his dying spells haven't been this severe and frequent for a very long time. He had about 8 over a period of two days, many of those were severe. The doctors have ordered for him an EEG (brain scan) and a heart scan for tomorrow, as well as they sent off some of his stool to be examined. The doctors are concerned that Josiah's heart and brain is being stressed as his airway has been occluded so many times this week.
These 'dying spells' occur when Josiah doesn't get enough oxygen and a low heart accompanies the more severe episodes. Sometimes Josiah can't recover on his own and that's really scary when his heart rate remains low for a while. I think a lot of it is related to the fact his trachea is narrow and partially collapses when he is upset/angry/crying/scared. In these moments he gets caught up in a cycle because he becomes scared about not getting enough air and he can't break the cycle on his own.
Over the last two days his dying spells have become less frequent and severe, but some seem to be unprovoked and they sometimes go longer than usual, requiring more oxygen than normal.
We ask that you pray for our guy, that God will heal his trachea and enable Josiah to get the oxygen he needs for every moment. We also pray that Josiah has not sustained any damage to his brain or heart as result of this many dying spells. This has obviously taken a toll on us his parents, but it has really hit Marie hard as she has witnessed many of these. Please pray our strength and renewed hope.
In other news, Josiah is slowing getting better at taking a bottle. He's not scared of it any more and seems to be taking a little bit more down each time. We're going to look for a 'low flow' nipple because it seems he's getting too much in his mouth at a time.
Thanks for all your prayer and support. God is good.
- Andrew, Marie & Josiah
3 comments:
Oh I can see the haunting dream I had months ago now again...what you're explaining was vivid in my dream and it scares me to be honest ! But I KNOW GOD IS GOOD !!! HE KNOWS WHAT HE'S DOING RIGHT ??? I will pray that Josiah BREATHES !!! And that he has a nurse by his side ALWAYS just in case he sofficates...or can't breathe (like that of which was in my dream.). He needs a nurse there with him 24/7 !!!!! But you know GOD IS THE ULTIMATE NURSE RIGHT ? So Lord intervene here with Josiah, RIGHT NOW!, please Lord he's so small and fragile. HOLD HIM HOLY SPIRIT and give him your breath right now ! AMEN and I KNOW YOU CAN DO THIS SO PLEASE DO IT ! Heal his brain and trache too Lord...enable him NOW ! AMEN
May the Holy Spirit's peace settle on you and Marie's hearts and minds at his very moment so that you can SEE the hope that Jesus has set before you! Where ever it may be, right? Oh Lord throw hope in all their faces AMEN!!!
Lord be with this family in each and every minute of each and every day. Bless them and show them Your way. Let them rest in You only Lord. Allow Josiah everything that he stands in need of Lord.
Love Sue
Hi Andrew and Marie ~
We are praying earnestly for God's intervention in this entire situation. He is in control of all things related to you and your precious little Josiah.
A verse for you today: "God has not given us the spirit of fear but of power and of love and of a sound mind." 2 Timothy 1:7
Thinking of you. We send our love.
Pastor Ross & Bev
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