A little note here before I crawl into bed ...
Josiah was given a try on the new ventilator today, the LTV. We were pretty excited about it because it is portable and the vent he'll have when he goes home. Josiah did fairly well on it today, but he did have a few 'moments', including his first dying spell in months. After the dying spell Josiah was sedated so that he wouldn't run into any more trouble, and was put back onto his other vent.
While we are so excited to see Josiah potentially have the freedom to move around with a portable vent, we also see the 'cons' with this particular machine. It's 'turbine-based' (unlike Josiah's previous units which was plugged into the oxygen line in the wall) and is quite a loud unit. It's loud and a hassle to take on and off, and has a bad habit of spraying water on Josiah's face and into his trach when it is disconnected (which off course only makes him upset!). It wasn't a great first attempt at the new piece of equipment, so we'll see what the rest of the week goes. Josiah needed a little more oxygen with this unit than with the previous (bumped up to 23-25% oxygen), and Josiah also had his RSV shot today too which would have definitely made him irritable on top of things.
Thanks for the love.
- Andrew, Marie & Josiah
2 comments:
we're praying that more steps can be made for Josiah to come home.
I pray that Josiah will just be strengthen more and more each day to breath on God's air alone! For it's God's breath that has given us life.
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