Josiah is having a very bad day.
The doctors have decided to sedate him, for how long we aren't sure. Every time Josiah becomes alert he is very frustrated for some reason, remaining in long 'brady-s' and d-sating off the map, needing 100% some times. When he sleeps, he's fine so they are trying to keep him resting.
The doctors for the moment are comfortable with Josiah having a 3.0 mm-cuffed tube. It should be large enough for his size, but will re-evaluate if problems persist. We have had many conversations with doctors today and it's been very overwhelming.
Pray for us. We need wisdom, we need to be able to process all this and talk with clarity. Marie and I just need to take the time to rationally discuss all that's been happening and what we think needs to be done. One the one hand, we've had enough with this whole respirator business and want to go with the trache. On the other hand, the doctors see some encouraging signs and think that a 3.0 mm could allow him to have a successful extubation.
Again, please pray. This has to be short because I need to eat, caffeinate, and then get back to Josiah. Marie is going to get some sleep at Easter Seals.
Thanks for your care and prayers. Thanks to Jean B., Cheryl M., Jake L., and Leanne K. for visitng us today.
- Andrew, Marie & Josiah
4 comments:
Hey Guys:
Still praying tons for all of you. If the doctors are somewhat encouraged with the cuff idea and a possible successfull extubation I says praise God and let's wait on Him these next few days.
Love Sue
While praying for you guys today God told me this::
Have hope! Ro 15:4 God's leading!!! Jer 10:23 So give Josiah to God...Matt 10:39
Love you three~
Hi Guys!
We can't imagine the emotions that must be running through you! Having a stretch of good days, then days of struggle. All we can do is pray for you and trust that God will not only come along side you in these times, but carry you through. Know that God's plans are to proser you (and your family!) and not to harm you. Though it may be hard for you guys and us who love you to understand why God is allowing these challenges right now, but we have to have faith that His plan is perfect, and that both of you (and likely the rest of us!) are going to come out of this wiser and closer to God, and with a new understanding of God's love. And Josiah will come out of this and be a living testimony of God's ability to still perform miracles here on earth!! What an exciting day it will be when we can all praise God togehter for the day you take Josiah home!! Hang in there guys, we pray for you daily (at least) and we are faithful checkers of the blog! And yes, when you miss a couple days, it does test our patience!! Take care, Love and Prayers,
Daniel and Renee
Hey Guys:
Me again. After I posted a comment earlier I was out running errands and praying as usual when this very strong feeling came upon me and I believe with all my heart and in faith that Josiahs extubation will lbe successful! What a joyous day of praise that is going to be!
Love Sue
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