Just the facts, ma'am ...
OK, I'm tired and got some work to do before I go to bed, so I'll keep this short (like you haven't heard that before).
The results came back negative on Josiah's heart 24-hour test. As far as the doctors are concerned, he has a good heart (I'll take that both literally and figuratively). Josiah's brady-s are directly related to stimulus (handingly, diaper changes, coughs, etc), and the doctors are uncertain if this is something that has developed over time or if it as a result of the cuff (NICU parents are in agreement that it is the cuff's fault!) So we are pleased and relieved with this knowledge. There is still a level of uncertainty: Josiah's brady-s may continue if he has a trache. All the more reason to ask God for the faith to pray for Josiah's healing!
Further, we have know a timeline to work with. The doctors have scheduled a trial-extubation for Josiah on April 25th; at this time he will also be 'scoped' to see if there is any interior damage from the last few weeks. THIS IS OUR TIME TO PRAY FOLKS!
As Marie shared with me, "Twelve days. That's it. But it's so far away." 12 days seems so long to wait when Josiah is responding poorly to this breathing tube, but doubt can set in when you realize that God has a 'deadline' now, so to speak. If God heals Josiah and enables him to breathe without the respirator - and praise Jesus we believe You can and will! - then Josiah's future is unwritten (but written on God's heart). If Josiah is unable to breathe on his own, he will go into a 2-hour surgery for his 'trache' and G-Tube on April 30th.
So there you have it. I really have nothing else to say, but I wanted to post this latest info so that you can pray more specifically through the next week.
Thanks for Colin & Carla R. for dropping by and Will & Doris B. for their surprise visit!
Existing by God's Grace & Peace.
- Andrew, Marie & Josiah
1 comment:
April 25th is written on my calendar! Count me in!! to pray.
And to see Josiah at home comfortably WILL be such a blessing I am waiting for THIS deadline too...
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