Thursday Morning - A Josiah Update

Hi Everyone

Here's a few things that are going on in Josiah's life ...

First, Josiah was able to take a trip on Monday! Yup, for the first time since August Josiah was able to scoot out of the room for about 20 minutes and he loved every minute of it! Marie said Josiah was absolutely taken in by it all, loving the 'new views' and not being bothered by the sun at all. Woohoo! We're looking forward to this being a part of his normal routine now ...

Second, we're gearing up for Josiah becoming more mobile ... and ultimately getting ready for him to come home. Next week our stroller will be custom fit to carry all his ventilator supplies and soon we're working on getting a car seat custom-fit for him as well.

Josiah is getting a lot closer to sitting up on his own! Of course, he's got a lot of 'muscle-building' to catch up on, and he really has to compensate for his spine, but he's getting better! Now if he would only stop trying to suck on his thumb at the same time, sitting up would be a whole lot easier ...

Amazingly Josiah's seizures and fevers have been essentially non-existent for the last few weeks - woohoo, what an answer to prayer! The seizure drug is working, and it's so nice not having Josiah's room as warm as it was.

And finally, a prayer request: Josiah's head is starting to grow (which is normal I guess) but because it's large to begin with, the neurologists are concerned that there is fluids building up and putting pressure on his brain. Over the last little while Josiah's sleep apneas have been getting longer (growing from 10 seconds of holding his breath in his sleep to waiting for the machine to take a breath for him - not good!). So the neurologists are going to examine Josiah soon to see what's going on up there, and it may mean that Josiah will have a shunt placed in his head to rid his brain-area of the fluids that are up there.

Thanks All
- Andrew, Marie and Josiah