Good morning world.
It's been almost a month since we last posted, but there isn't much tell in the way of Josiah News. At the beginning of the month we had our first "family vacation" by heading out to Harrison Hot Springs for our church conference's Pastor & Spouse Retreat. We didn't get much sleep (hard to pack a nurse along!) and Josiah was dealing with an ear infection (needed a lot of hands-on time since the noise bothered him), but it was such a great accomplishment to say that we actually did it! :D
Josiah has come completely off Dilantin (seizure med) and is maintaining his seizures well. He's also needing much less diuretics, which is very encouraging. He also spends most of the day off the ventilator, 10+ hours on his 'nose' - such a blessing!
Last week Josiah had an ECG and echo exam for his heart. Everything appears to be functioning well, despite his anomolies. The remaining 'hole' he had in his heart has closed up on its open, which is a big answer to prayer. There are still a couple of oddities (such as a VERY large artery, a small tissue 'flap' that is forming) that the cardiologists would like to keep their eyes on, and so he'll had annual heart check ups from now on.
Josiah continues to deal with ear infections, and this last one has been a doozy. In addition to his ear woes, he seems to also be fighting a bug or something: diarrhea for a couple of days and now this morning very wet lungs. You can pray that he gets healthy and doesn't require a hospital visit/stay.
Prayer Requests:
~ (Permanent!!) Healing from ear infections + wisdom as we work with his doctors about this
~ On-going development: motor skills, communication, and positioning
~ General health, well-being and comfort
~ Energy + wisdom for Marie & I
Thanks for all you do for our family! :)
- Andrew, Marie & Josiah
4 comments:
Thanks for the update. Josiah is an amazing little fighter - he has been through so much. You are such loving parents to him and he knows it!! I will pray for strength for all of you and continued healing for Josiah. So glad you got to go to the pastors and wives retreat at Harrison!
so, maybe the next family vacation will be to the sunny okanagan =)
:D ... well, Renee we're actually trying to be even more ambitious than that: we're planning to take Josiah to Calgary to meet his great-grandmother for the first time!
energy and wisdom for you both? yes indeed!
Happy Travels, and may God be THAT nurse that travels with you always!!!
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