Hello Folks
Just a short blurb to post here.
Josiah has a had a weird/rough weekend. It started with a mini-aspiration Saturday night, which was cleared up by bedtime through suctions, chest physio and some prayer. But he had an absentee seizure through it all and ended up having 8 on Sunday, and about 6 yesterday. These seizures are different from his normal convulsions because they happen while he's awake it's like his brain freezes for 5-10 seconds (lights on, but no one's home - stiff and not breathing).
He re-coops rather well, but the seizure is usually broken with a cough/puke which isn't so fun. Further, this large amount of seizures has really messed up his internal clock and he has been sleeping in just short spurts (only 3-4 hours last night - thank God for a nurse to watch him so we can sleep!)
We've boosted a seizure med and are compensating with some electrolytes since he's had diarrhea all week. He doesn't really have an appetite, but all in all he's been in a really great spirits, with bursts of energy and has been mostly quite content so we're not exactly sure what the problem in.
So prayer for healing, understanding, patience and energy would be appreciated!
Toodles.
Grace & Peace
- Andrew, Marie & Josiah
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