... 'bout time eh?!
Finding the time to update these days is getting harder and harder! Life is just full: busy, joyful, long, exhausting, exciting ... full! We barely have enough time for sleeping and eating, let alone catching up on email or reading a book. Here's some tidbits of news and events from the past couple of weeks.
Josiah continues to do well, but is probably in the middle of a cold right now (something similar to what he had 2 weeks before he was discharged from the hospital). Noticeably he has to work harder to breathe sometimes through the day, but we got an inhaler to help him out. Thankfully - Praise God! - he hasn't needed any oxygen or increased ventilator support through this, a big big blessing and a sign that he's growing up.
Josiah has also had a few seizures now since coming home, but we're managing them just fine. The potential causes of the seizures are plenty, but it's who he is and we're slowly working towards getting the right seizure med levels in his body. You can continue to pray that he brain will develop and with the help of these meds that he'll be able to move past these seizures.
We've got nurses! YAY! We have two amazing nurses that come in each week for 3-4 shifts. That means Marie and I get two nights of sleep and some help during the day - woohoo! And it looks like we'll have a third nurse joining us mid-June so that means we should get sleep every Monday to Friday - WOW! ... and to clarify I suppose: Marie and I can sleep when we are watching/taking care of Josiah through the night. It's just on the recliner in his room and not with each other!
This past Saturday we drove out to Aquadel Golf Course (near Cultus Lake) to be pre-taped for the telethon that is going on Global this coming week. We've been told our 2-minute interview will be on Saturday (May 31), but we don't have a time yet. If I'm told the exact time before Saturday I'll post it, but otherwise you can just take your chance and try to catch us on TV. If someone wants to record it for us that would be sweet! (we don't have TV).
So far we have three incredible friendswho have completed their trache care and ventilator training through BC Children's - and more who are planning for it - so that they are now able to provide respite care for Josiah. We are so blessed! Marie and I really enjoy having them around, hanging out with them but also handing over our son for a while to catch a break!
We were completely surprised to have a brand new air conditioner donated to us this week. The new place cooks in the summer heat and we noticed the difference AC made within minutes. Also, Josiah visited someone's house for the very first time this week - my aunt and uncle's out in Mt. Lehman. Such a fun memory maker!
We're praying and hoping that we can get to know some of the people in the condo soon. Though we've had a steady stream of visitors coming in, we still miss Arnold and the whole community-feel. We've already met some nice folks and hope that we can establish some friendships along the way!
That's really all the news of the past couple of weeks. I know it feels like forever since I've logged on here to write something, but we're settling into a (CRAZEEEEE!) routine of life, taking care of Josiah, working, playing, visiting, bringing in nurses and repeat. And man, we make a lot of garbage: I never realized how Josiah's used supplies just add up!
Thanks for all your faithful prayers and thoughts.
- Andrew, Marie & Josiah
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