Hello Hello
We haven't yet had an official follow-up with neurology in regards to Josiah's MRI, but Marie was able to look over the images with our doctor to get a basic understanding of what's going on. The scan of Josiah's brain was to ensure that his head was expanding for bad reasons (for example, fluid build up) and thankfully there are no concerns that would prompt the doctors to give Josiah a brain shunt. In this case, no change is great news.
The MRI of Josiah's spine was most enlightening and disconcerting all at once. Even in a relaxed position (lying on his side) Josiah's spine is severely curved in his lower back, creating a significant issue when it comes to posture support and healthy development. As far we know, Josiah is still not a candidate for a brace because his too young, but we can anticipate years of follow up, physiotherapy and potentially surgery.
Thankfully, Josiah continues to demonstrate an interest and ability in motor skill development. His head control is getting stronger, his back and neck muscles continue to increase, and he is keen on trying to crawl and loves kicking his legs. It's too early to say if Josiah will every be able to walk or not, but our instinct is that he will - it will just take time. So we pray and wait to see what will happen in this area of his life!
Other than that, we're are waiting for equipment to come in so that Josiah can go for rides in our van. We are now able to travel off property with him, and he's been enjoying his trips to the park and Safeway! Josiah is also teething (at least three teeth are coming in up top) and has started taking small amounts of formula through a bottle again!
The only downer news of the past week is that Josiah has had two seizures in the last 24 hours, unusual and concerning since he hasn't had a seizure in months. His med levels are being checked to make sure everything is correct for his size, and thankfully so far there are no signs that he might be getting sick (seizures can often be a precursor to illness). The reality is that this could just be a part of Josiah's life as his brain is stretched and stimulated. So prayer in this regards would be fantastic.
In God's Grace & Peace.
- Andrew, Marie & Josiah
3 comments:
Such encouraging news to hear you guys sre leaving the building and getting out!
Can't wait to see you guys-we'll get out there soon-
love jen mike and caleb
Thanks for the update Andrew.....We can't wait for Josiah to come home!
I'm glad to hear that there is no fluid, upset to hear of the curvature and seizures. I will pray that Josiah will not be in too much pain in his life. I pray the Lord holds him and rocks him in his pain, and that he will be able to walk! Amen~
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