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Not a whole lot to say, but I need something to do while we wait for our meeting.
The ENT (ear-nose-throat) technician checked out our little Josiah this morning. They wanted to make sure everything was alright in the nasal passage. The technician hasn't given us his findings yet because he needed to check in with his supervisor first, but the good news is that they were able to get Josiah's nose tube down his left nostril (nurses haven't been able to yet because it was so narrow). Oh, and the tube is just for feeding because it's more comfortable than going through his mouth. Josiah was pretty upset about the tests and took a little while to settle down, but he should have been fed by now and will be doing better.
Marie's pretty tired. You can pray for her. Obviously she finds it hard to leave Josiah's side and she definitely needs to make more time throughout the day to sleep. She was able to hold him a little already this morning which is HUGE (as all you mother know!), especially since no one was able to hold him yesterday because was D-sating too much (desaturating, which means the levels of oxygen reaching the blood was dropping every once in a while).
I'm going to tinker with my sermon here today (ie outline, intro & conclusion) since the meeting with the geneticist is taking so long. I'm not even sure yet if the doctors have made their rounds yet this morning. Grr. So frustrating. I'll be driving back to Abbotsford early tomorrow and will be typing up the sermon all day and then staying the night back in our house (which will be SO HARD, but a lot better than having to make the long commute tomorrow morning). This is going to be my first sermon that Marie misses (which is going to so suck - I LOVE having her there as support!), but I really want her to stay with Josiah. Immediately after church on Sunday I'll be weaving my way back here.
Hmm. What else? Had dinner again with Marie's family last night and got see Emily (her sister) one last time before she heads back to Calgary. I think Chris (Marie's brother) is heading back on Saturday too. Last night we were offered some Harlem Globetrotter tickets - which would have been so sweet! - but we needed to eat and couldn't make it. We've made arrangements with Easter Seals House to stay for a few more nights, up to Sunday night for sure.
Last night was pretty hard for Marie and I. We had a few cry-fests. It wasn't easy to see Josiah D-sating so much and not being able to hold him. The worst moment for me was watching/listening to him cry for two minutes and not being able to do anything for him. That absolutely tore me apart inside and out.
We been fortunate to have nice weather every day! It's so good to be able to walk to 'n fro with the sun and blue skies. My parents will probably be coming down again next week for a couple of days - crazy farmers :D
Thanks for those who have visited this week: Loralee H. & Sandi G., Jeral & Leanne K., and Kari D.
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I'm stopping this draft here, posting it, and then starting an 'afternoon' post.
- Andrew
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